Sunday, December 6, 2009
Happy Birthday Florence!!
Wednesday, October 14, 2009
1000, baby!!!
I just reached my 1000th post on my cranio support group website http://www.craniokids.org/ and I realized it's been a while since I updated on my craniokid.
We are now 18 months out from her surgery. As I read stories from the new cranio moms, I remember all of the concern and worry we had as we first heard our diagnosis, did research and ultimately handed over our 4 month old to have her skull reconstructed. There are so many on our site that are "wait and see" that, as horrific as the surgery was, I was grateful for not having any choice. I remember praying, "God, please hit me over the head with the answer. I can't do this by myself". Now that we are this far "on the other side", as we like to say, I know that we did the right thing for her. You never stop worrying, of course. You're constantly checking her out: "are her eyes even?", "was this bump here yesterday?", "are her ears level?", "is the browline pinching again?" Florence looks good, even when I stare hard at her, looking for worrisome flaws. Her "soft spot" is hard and raised, but you can't see that because of her hair (yay! we're finally getting some hair, beautiful, curly, strawberry blond hair!) and the neurosurgeon at her one year checkup reassured us that was within the normal range. I read about kiddos that have extraneous soft spots remaining after surgery or other issues, and I feel so blessed with how Florence has done. Every once in a while, a behavior will rear its ugly head and you can't wonder if her brain is being affected. For example, she tends to get obsessed with something and lock onto it. For most kids, you might just say, she's trying to control her environment, but for a cranio kid, you are constantly watching for her brain to have room for what she needs and wonder if it's not being squished somewhere. I don't really think she's having any trouble, but like I said, the worry never leaves. We do have an appointment with her cranio-facial doctor in December - he's the artist who rebuilt her so I'm excited to hear what he thinks of her look.
Since Florence is the fourth kid, I have to admit, I have no idea if she is on target with her milestones or not. I haven't read a baby book since number 2. However, she seems to be smart as the dickens and is keeping up with her older siblings just fine. She talks constantly, and we are moving from the incessant babble to words that I can actually understand. She usually speaks "in sentences", but there is usually only one or two words that pertain to what she is asking about. But recently, she has started phrases like "I'm hungry", "I want a pamper", "Let's go car", "go outside", "I books" and "I watch Elmo". She really understands everything too, so if I have to occasionally translate what I think I heard, she'll listen and say no until I guess right, at which time she'll say "yay, books" or whatever. She's also learning her manners. If someone gives her something she asked for, (and she's in a good mood), she'll say "thank you, alex". If she accidently bonks your nose in one of her spastic jumps in your lap, and you start tearing up, she'll say "sorry, mom". And if she burps or hiccups, she'll cover her mouth and say "excuse me". And in a rare form of understanding, she'll say "excuse you" if you burp. She'll also "bless you" if you sneeze. It's all adorable. She has been able to say the names of her siblings for some time. She even calls dad either "honey" or "tony". But she has just this week started saying her own name when you point her out in a picture - she used to call herself baby. It's not quite right, but I can hear it, and I love it. It's the sweetest sound. The picture above is all the AZ girl cousins in their matching dresses that Aunt Kathleen bought them.
She is acting like a typical almost 2 year old. She can be SO stubborn, and I'm really having to remind myself not to give in to everything that she wants just to keep the peace or just because it's easier. She is the baby, and she is rotten to the core, but I want her to learn how to share and play well with others. Here's a picture of her playing kitchen with her baby girl cousins. She loves playing kitchen. She also loves to play/talk on the telephone. In fact, she found an "old fashioned" phone with a cord in the laundry room and I kept catching her in there making calls. And at the store yesterday, she saw a play phone on the toy wall, and I tell you, it was the best $4 I ever spent, my entire shopping trip was "fit-free" after I grabbed that for her (see, rotten to the core!). Only problem so far is that the babysitter put her to bed with it last night and I woke up to "phone sounds" early this morning. She is an early riser. No matter what time we put her to bed, how many room darkening devices, she likes to get up early. Poor Lucy doesn't feel like she gets enough sleep.
She loves dancing. I can offset just about any tantrum by putting on some good music. She has some great moves of her own, and will copy anything she sees you do. Even if you're just stopping to chew your fingernail, she thinks that is a step and she will put it in her repertoire. When she hears music at the mall or the elevator, or anywhere, she says "hey mom, dancing!"
She's also really getting into books. Her go-to-bed book is "Dinosaur's Binket" by Sandra Boynton. The story tells of a dino who can't go to bed without his binket and in between the poetry he yells "where's my binket". Florence reads all those parts - yes it's more like "a binket!", but still, she knows to wait her turn to come in. She also loves the lift and peek Elmo books. Fortunately we have tons of those because Charlie also loved Elmo lift and peek books. (It's so funny to think how he's so obsessed with complicated video games now when such simplicity used to make him happy!)
Her favorite movies are Toy Story 2 (not TS 1!), Lilo and Stitch, Curious George and of course, anything Elmo. We tried watching Little Mermaid, but she kept crying at the part where the ship burned down and they had to leap into the water..."poor doggy, poor, poor doggy!" She did, last night, specifically ask for Bear in the big blue house, which I was excited about...not just because I love Bear, but because it was something new. Here's a picture of all the AZ cousins at Patricia's birthday party.
We have postponed potty training for now. She appears ready, and I hope I don't miss my window. But when I tried, she just kept holding it and following me around asking for a pamper. And since I have my surgery next week, I didn't want the training to fall into my mom's hands (as tempting as it is to get someone else to train your child) or to fall by the wayside. I figure we'll maybe start after the holidays are over so that I can do all my shopping chores with worrying about finding the potties.
We had two birthday parties in September. One for her cousin Elizabeth, who is 9 now. They all came to our house for a family party. Since Elizabeth is getting to be "that age" where parties aren't as cool as, say, a Jonas Brothers concert - we had to throw one so that her cousins would get to celebrate with her. We also celebrated her cousin Patricia's 2 year old party. I helped Ginny make her Elmo cake for her party. We also had and Elmo pinata. I was concerned what the little girls would think about bashing open their favorite tv friend, especially when the older kids started batting his disconnected head around the backyard - this adventure led by Uncle Joe. They ultimately seemed unphased by it, especially since it led to the wide scattering of candy.
So now it is October. We haven't decided yet what she will be for Halloween. I have a dallas cowboy cheerleader outfit that would fit her, but also a leftover Clifford or giraffe. She probably doesn't really care one way or the other, so we'll just have to decide. I do think this will be the year she "gets" what Halloween is all about.
Please do visit our family website to catch up on the other kids. Follow the link to the right...
Friday, August 14, 2009
August 2009
Tuesday, April 28, 2009
Happy Cranioversary Florence
Friday, March 27, 2009
Almost 40....
Back in February, I threw a Mardi Gras Party for my MOMS group. This set off a string of Kings Cakes. King cake is actually a bread, so I got some good use out of my bread machine. I even hid the baby inside. I also found that it is such a southern tradition that even my friend from Georgia didn't know what it was. It's primarily a New Orleans thing, but since Mobile claims Mardi Gras as well, we knew about it in Alabama.
The kids are doing well. We're managing to fend off most of the winter illnesses. Except for a stupid stomach bug that keeps making the rounds in various extremes. Charlie's my carrier. He gave it to me and I was so bad off Tony had to take off work. Now Charlie's got it again, though it seems more mild. But after visiting my friend in the hospital with her baby who has RSV and pneumonia, I'll take our little "crappy" illnesses.
Charlie is doing very well in violin. He's getting good praise in orchestra too.He's so diligent about his practicing, and I love to hear him all the time. He's been funny about listening to me practice - "Why do you keep playing that one part over and over?" He usually just plays everything through and calls himself finished. He is doing well in karate as well. He got his green belt a few weeks back and even one two medals (2nd place) in a tournament last weekend. I was proud of him. I've started letting him walk to school by himself on occasion. He likes to play wall-ball with some buddies before school, so if he does all his chores and practice, I'll let him go a little bit early. Of course he has to pass the quiz before I let him out the door: "Do we talk to strangers? What if someone is looking for a puppy? What if they offer candy" I try to get creative, but he knows the right answers. I don't worry too much since it's only down the block and I'm ususally 4 minutes behind him. But I did cry that first day, but Tony said it was ok, he was old enough.
Lucy has been cleared by her doctor for all activities she wants after her broken arm incident. She is still lacking just a bit of flexibility in her elbow. Her Dr explained this is because her arm bone, in healing, filled in a divit that is naturally there to allow the arm to fully bend/extend. As she grows, the divit will return. Isn't that interesting?! It's this same divit that makes that area a common break in kids. Lucy has also turned 7 in the last few weeks (ha, month). She had a little birthday party with all her little girlfriends. They came over for "tea" and an afternoon of glamour with makeup, hairstyling, and fingernail polish. It was hysterical to see all these girlie girls together. Her favorite gift was from her daddy....a geniune ipod - yes, an older model bought off of Craigslist, but one with a screen that plays movies and all the Soundtracks to High School Musical movies.
Alexander is doing Kindermusik again. It's been a slow start, but now he actually goes to class with a few other kids without me. Florence and I hang out in the lobby until he's finished. It's so big boy of him. He's been so patient with me as I was preparing for that recital. He about knows every movie we own by heart, poor neglected thing. I would try and have a few outings. Here we are feeding the ducks at a nearby pond. Florence loved this to, but she seemed determined to find her way into the pond, so it wasn't as nice for me....much chasing and screaming....from both of us.
Florence is approaching her one year "cranioversary". It's hard to imagine that this time last year, I was afraid to put her down because I wanted to hold her as much as possible. And now, she is such a stinker, and so independant. She pulls chairs over to reach things, she is starting to say new words everyday, she knows many of her body parts, and OH, she loves to dance. She can't hear music without bouncing and twirling. Here's a pic of her getting ready for bath...I used a far away one so it's not obscene, but if you look over her shoulder, there's her papoo hanging from her dress. She's a funny girl. She loves making people laugh, and I can't help it when I watch her tiny dimpled butt run around the house.
So there we are. You probably won't hear from me again until after Easter since I'll be at church everyday that week. But by then I'll have made it over the hill. I'm planning on dinner with Ginny and Eileen and their husbands (and mine of course) that night, but I'm saving my big party for after Easter. Who wants to have a party when everyone's given up desserts, alcohol, etc.? I gave up dessert....the pounds should've been falling off of me as I usually have something every day. But no. I'm the only person who can have a 48 hour stomach bug and still not lose any weight. I give up!
Thursday, February 5, 2009
Happy New Year and a little bit....
Dear all,
I’ve been wanting to write a letter updating everyone for a while, but time is just not my friend. As it is, it’s almost February, some of my decorations are still sitting out, even if they’re not “displayed”. But since Dad’s letter writing of Christmas just came, ok, several days ago, I felt inspired again to write. My inspiration this morning comes from a book I’m reading called “The Hour I first believed” in which there are extremely detailed letters of a young girls’ visit to Mark Twain’s house. I realize that I’m reading fiction, but the amount of detail that went into that letter was impressing and amazing. It had its own chapter and contained so many elaborate details of venue, environment, food and dress, and it embarrasses me to think I will try and include enough info to be informative and yet, small enough not to clog up everyone’s email….
We had an extremely busy Christmas Eve. As usual, I played a great deal at church. I had told Mark (our director) that I would play every single mass on Christmas Eve if it meant I didn’t have to show up Christmas morning. He had already asked me and the kids to come to the 4:00 Children’s Liturgy, since he is new to this job and doesn’t have the Catholic School connection that Jaime had, he was short on kids for that service. We normally have this one outside, but for once, Phoenix weather didn’t comply and we had to plan to put our masses back inside. This meant splitting them in half since our sanctuary is not prepared to handle everyone who only comes to mass twice a year. I was glad to help, but I was disappointed that Charlie and Lucy’s first year in the children’s choir would be without me there to witness it. As it turned out, they delayed the start of the second mass so that people had to time to wander in to church, not find a seat there and cross back to the hall. That meant I got to accompany Charlie as he played “O Come Little Children” on the violin as prelude music. I was so proud I thought I was going to burst – he, of course, was really laid back about it, no big deal. Lucy was also feeling vulnerable because of her arm, so she accompanied me to the other service and sat next to me at the piano and sang. By the time I got home at 2:00 after midnight mass, Christmas was laid out, Santa had come and gone and everyone was asleep in bed.
But Christmas day was great – nowhere to be, no specific time to finish, no work – all in all, a great day. I joke that Tony and I did our part to keep the economy afloat. With all our talk of cutting back, including our substitution of ornament making and cookie baking with our friends and neighbors in lieu of exchanging gifts, the kids still had tons of gifts under the tree. I desperately tried to stay away from video games as the gift of choice, but Tony did find a creative way to give the gift of electronics: two sets of bongo drums and the video game that accompanies them. In this game, Charlie and Alex (or sometimes my neighbor Tricia,) compete to properly accompany a song on the video game by tapping the correct drum at the correct time according to a series of colored circles flashing on the screen. It’s fun, if not a little tiring, and certainly noisy. Even Florence likes to get in there and dance if there’s not a drum available for her. The boys also got some outside toys – a pogo stick for Charlie, and a “big boy” scooter for Alex. I have to say the pogo stick hasn’t gotten that much use, but a lot of that is my fear from more broken bones after Lucy’s accident. Lucy’s primary gifts were extremely girly – a Barbie head for her to fix hair, a kit for braiding, crimping, and beading extensions that you would then clip into hair, and her favorite, a pretend espresso machine so that she can serve coffee/hot chocolate to all her friends and family. The hair toys are sitting quietly waiting for her to get her cast off so that she can have both hands available, but she and Alex play “Starbucks” nearly every day. Florence didn’t care much about opening presents, but she did get a few things she likes to play with – her own cell phone and this magnet play set for the fridge that talks to her and makes animal sounds. I envisioned her playing happily with this while I prepared dinner in the evening, but mostly I just keep retrieving the parts out from under my feet and shutting down the stupid Old MacDonald song. My big gift was an I-Pod Touch. Tony had bought me, several years ago, a really nice 2G MP3 player that did music, photos, videos, etc. I enjoyed it and got great use out of it as Alex watched movies on it during my many OB visits when pregnant with Florence. Well, I helped my neighbor research ipods for her daughter’s birthday and was surprised by how they’d come down in price, so I asked for one for Christmas (8G, please). Well, I had given up since he told me he spent my ipod money on my driving school course I had to take to keep a ticket off our car insurance (you can’t pass even a street sweeper in a school zone!). He told me I couldn’t just go hot-rodding around town (16 mph in a minivan) without consequences. But he surprised me with the Ipod Touch (16G, yay!) and it can do everything – even check my email and get on the internet as long as I’m near a wi-fi. It’s so cool. In fact, it’s so cool, he bought himself one for his birthday…32G of course, because his has to be bigger and better. That, and he got a good deal on Craigslist.
Charlie has gotten to join the orchestra at his school this semester. It’s not exactly what I imagined for him – a place to make music with his peers and make new friends who had something in common besides wall ball and video games – pretty much, we get there at 7:30 in the a.m., I help the teacher tune everyone up and by the time he finished roll call, it’s 7:45 and they have 15 minutes before he dismisses them to class. Knowing this, it’s not surprising that he figured after only 6 months of private lessons, Charlie would belong at least in the intermediate class if not the advanced. He also continues with his karate twice a week. In school he is doing very well, except for handwriting. I waver back and forth about how important this is to me. On the one hand, every genius has notoriously bad handwriting; on the other, sometimes I don’t even grade his homework because I can’t tell what it says!
Lucy’s broken arm has hardly slowed her down. I have to keep reminding her that even though she feels better, running and monkey bars are out of the question. We took a hike on New Year’s Day and she had no trouble making it to the top of Hayden’s Butte despite the fact that I kept fussing at her to slow down and be careful. And despite the fact that I threatened her about the playground after we found sand in her first cast, she still comes home covered in it. She looks cute running around in her hot pink glittery cast, and it’s going to seem weird to see her without it after we get it off next week. Gosh, time has flown. We’ll still have to see how long it will be before she can return to normal activities, but I know gymnastics is off the table at least until the fall. Her birthday is coming up and despite the fact that she made out like a bandit at Christmas, it hasn’t stopped the begging for birthday plans. She lost one of her front teeth. It has really changed her face.
Alexander thinks that because Joe Leo has turned 4, that he must now be 4. After all, they were always the same age, right? He wonders why he hasn’t had a birthday party. But if we try and explain it’s later, he still asks, “you mean, right now?” – he just isn’t getting the whole calendar thing. He loves his scooter he got for Christmas and he is also getting good at driving the jeep (even with Florence buckled in) and he is also learning to ride Charlie’s old bike. It does have training wheels, but they are so off-kilter that half the time they don’t touch the ground because he doesn’t like how the leaning feels when they are. I figure if I get him outside everyday, I could definitely take them off by this summer. I think Lucy was only 4 ½ when she did it. He and I are still going to Kindermusik classes. It’s a lot of motion and dancing and rhythm repetition and playing on instruments. The only part I don’t like is the CDs that were part of our kit. Two CDs full of songs, some of which are ok, but most of which are sung by “trained” children who sound so unnatural, it’s creepy. There’s also all the synthesized music they attempted to make sound like real instruments, down to how they record several string instruments, making them just slightly out of tune with each other. And the sound effects…well, don’t get me started.
Florence finally started walking on Christmas day. We had seen the signs it was coming. She would let go of things here and there and take a few steps. Then that day, she just quit crawling. And when she’d fall, she’d get right back up. We were so happy. Of course, the few bonks she got were right on her forehead where her surgery was. But now she is pretty steady, learning to navigate stairs here and there where she meets them – even treating the step off the patio and the seams from grass to driveway as a step, getting down on all fours and putting one foot at a time on the new level. She loves to do what the other kids are doing, which drives them crazy. I’m constantly being asked to remove Florence from whatever blocks, legos, or games they are playing. Her favorite toy, besides Charlie, of course, is a pretend cell phone. And from the moment she learned to walk, she has paced the kitchen with the phone to her ear chattering away. She babbles all the time now. Other than Uh-oh, she still doesn’t really have discernible words, but her babble is extremely conversational with ups and downs, pointing and pauses so you can respond. It’s really amazing. She’s also really stubborn and totally understands the word no. She can throw a big time fit, but she’s still easily distractible, thank goodness. She also is currently healthy for the first time since Thanksgiving – it has really improved her nighttime sleeping – she goes from about 7 until about 4:30, when she’ll wake up to eat and then go back to bed. I finally put away the little crib in my room. She enjoys going to the nursery during church time and pretty much eats anything we give her. Tony and I are beginning to see the light at the end of the baby tunnel.
By now, you all know about Tony’s new car. The accident in early January totaled the Sentra, which wasn’t difficult given it had 160,000 miles and was 11 years old. The thing that put its value where it was were the new tires and the nice stereo I installed for his birthday last year. So USAA is “buying” it from us and we bought a really nice, almost new, Civic Hybrid. Tony’s first choice was something cool and fun, but after doing a little research, the MVD convinced him that if he bought a used car that already had an alternative fuel tag, they would transfer it to him so he could use the HOV lane to get to work. Well, in true government fashion, after being reassured by no less than 5 people that it would work out, when he went to do it, they wouldn’t let him. I expected him to turn around and trade it in for a VW Bug convertible he had his eye on, but he’s keeping it. We’re hoping that perhaps our new governor (because, as you know, Napolitano defected to DC) will find a way to expand the program or make it work for us. I even wrote her a letter. It’ll no doubt get lost in the shuffle with all the letters she is receiving on planned cuts to education funding, but I had to try. Maybe she’ll be happy to take on something she can actually solve to someone’s satisfaction. But in the meantime, we’ll have to be happy with our financial savings in gas mileage, as we watch gas prices climb back up. That and the fact that Tony is no longer commuting in a car destined to break down.
My projects lately included putting together a photo album for Tony’s birthday. I collected all the “professional” pictures in one album from our history as a family. It was so much fun to see how the kids have grown and to see how much they favor – those Horn genes run deep, I tell you. Alex kept looking at pictures of Charlie and wondering if that was him. I also dug up all our Christmas letters, so it was neat to read the highlights of each year too. My other projects include getting the house ready to host two gatherings this week. Tony and I will host our bi-monthly Marriage Encounter meeting on Tuesday and I will host a Mardi Gras theme party for my MOMS group on Friday. I’ve put pressure on myself to do extra dusting and cleaning, hanging curtains over the kids toy clutter “closet”, organize pictures that didn’t make it into the album into frames, put batteries in the clocks that are dead…you know, the stuff that doesn’t really matter if you have good food and plenty of wine. I’ve also been working in the yard. We planted winter grass in the front and now I’m trying to keep it from dying. I always love getting the yard together, but I have the worst time “maintaining” it. I planted flowers in the beds out back, but they died during the one freeze we had in January. There’s the back lawn which I deliberately allowed to go dormant for the winter; however, the weeds don’t know the meaning of the word dormant. They creep underneath the alley wall and are thriving. Even the weed killer I put down doesn’t seem to be helping. I should just put down Astroturf and plant fake flowers and be done with it.